It’s been almost a year since the Food and Drug Administration approved the first genetic treatments for sickle cell disease. So far, only a few patients have received the long-awaited treatments.
As his stem cells are collected, DeShawn “DJ” Chow talks about his upcoming sickle cell gene therapy treatment with pediatric hematologist-oncologist Leo Wang at City of Hope Children’s Cancer Center on May 22.“It’s almost like I’m battling myself,” says Adekanbi, 29, who lives in Boston. “Sort of like a dark, I don’t know if you’d call it like evil within, sometimes it feels like .”
And Adekanbi’s far from alone in wondering what to do. While there’s a lot of excitement about the treatments among sickle cell patients and those suffering from a related disorder known asAdekanbi says she would try to freeze some of her eggs if she decides to proceed. But she and other potential patients are concerned about more than their fertility. The treatments also are grueling and complicated in other ways., who studies sickle cell at the University of Michigan School of Public Health.
In addition, the companies are working to help patients afford the treatments and related care, and more government and private insurers are paying for it.
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