San Diego-based n-lorem develops specialized medicine for patients like 12-year-old Connor Dalby, a boy who could be the only person in the world living with his disease.
“How could I not do what I could to help these patients?” he said. “These diseases destroy families. To help patients and families who otherwise have no hope, no help, no chance, I think is as meaningful a thing I could do with this part of my life.”, two years ago. Dr. Crooke said Connor was the inspiration behind the effort. The foundation, based in Carlsbad, helps patients with ultra-rare and even nano-rare genetic mutations.
Dr. Crooke said n-lorem is working with a handful of patients across the country right now but he hopes to raise more money and expand the effort. He estimates there are millions around the world suffering from these ultra-rare mutations.
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