I recovered from breast cancer treatment only to wind up back in the hospital with a mysterious illness.
, I felt as if the toughest part of my treatment was finally over, and I was making plans to restart my life. I even bought tickets to a Billy Joel concert. But a few weeks later, I had a terrible bout of diarrhea.and was careful what I ate for the next few days. But something still felt off.
Weeks passed, and I continued to have diarrhea as well as nausea and acid reflux; I dropped 10 pounds in just a month. One of the drugs I was taking to keep my cancer from returning was new, and I had been told that one side effect could be diarrhea, so I asked the doctor to remove it from my protocol. He encouraged me to stay on it, and I reluctantly agreed. I focused on
and healthy eating, but I was having difficulty keeping down any food at all, and I lost even more weight. I had to miss the Billy Joel concert.On Super Bowl Sunday, I was at a friend’s baby’s birthday party. Though I had been feeling fine, as I stood up to greet friends, the room started spinning and I fell to the ground. My friends drove me to the hospital, where I was kept overnight for dehydration and low electrolytes.
My health continued to decline, and I felt as if no one was helping me get better. My doctor referred me to specialists, but their next available appointments were weeks away. I had a second hospital stay and received multiple hydration infusions over several weeks. I had numerous lab tests and scans. Several specialists each saw me only once. Each focused on one potential explanation , and when test results disproved their theories, they didn’t follow up. I felt dismissed.
Finally, my doctor referred me to a gastrointestinal nutritionist who hospitalized me to get some answers. I was placed on IV nutrition, and once I was stabilized, the doctor performed an endoscopy and a colonoscopy. He came up with a surprising diagnosis: I had developed.
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