Luke Adkins was born with congenital spindle cell rhabdomyosarcoma, a rare cancer that affects the soft tissue.
But after x-rays and other tests, Luke was transferred to UAB Hospital in Birmingham, Alabama, then to Children’s of Alabama Hospital. He was then diagnosed with cancer just days after being born.
Grace said she was reassured by doctors that she did nothing wrong during her pregnancy. Grace said she even resorted to genetic testing, and all of Luke’s genetic markings came back negative. Doctors proposed that Luke have his shoulder removed at just two weeks old followed by chemotherapy, but Grace said she couldn’t handle watching her infant have such a major surgery.Doctors then proposed chemotherapy followed by the surgical removal of his forearm and elbow at 3 months old. Luke underwent amputation and chemotherapy, which Grace said made her son fussy and caused him to vomit often. "When I look at him, I just see a happy, fat little baby," Grace said.
"We want to expose him to prosthetics early, and then as he grows and gets older, we’ll let him make that decision," she continued. "A lot of people with limb loss don’t want to wear prosthetics."Grace said it’s a good thing her son is too young to remember his medical journey, and won’t have to adjust to having one fully functional arm.
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