The former Rangers and Liverpool midfielder has called on the Scottish Government to take action for kids who suffer from pidermolysis bullosa – a rare, painful disorder which causes fragile, blistering skin.
Football legend Graeme Souness last night visited the Scottish Government to demand it takes action to help end the suffering of little Isla Grist and hundreds like her.
Last night, he teamed up with Isla’s dad Andy and Falklands veteran Simon Weston at a reception at the Scottish Parliament where they appealed to MSPs for cash for research and to carry out trials for drug repurposing. Currently there is no government funding. “And every day is a groundhog day for them. Every day is more of the same pain, itchiness, not sleeping, having to have bandages changed and having to have ridiculous drugs like diamorphine. It is horrid. I think it is an absolute sin that we have not been able to help these children.
During a recent visit to Westminster, Souness met young people with a milder form of the disease and he asked what creams they used. He said: “They said, ‘We use E45’. I said, ‘E45 that you can buy in Boots, that I used to buy 45 years ago when I had dry skin on the side of my temple?’
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