A family will be honoring their son while breaking a sweat, all to raise money to help other children in Florida who are living with terminal illnesses.
GREEN COVE SPRINGS, Fla. — Levi Shepherd was just nine years old when he passed away from Lennox-Gastaut Epilepsy and IHPRF syndrome in 2022 — a severe, inherited neurological disorder that affects children at birth or early in infancy that leads to a life with constant seizures, speech impairment and developmental delays., worked to give him and his family memories they would always treasure.
This funding allowed Levi and his siblings to have Christmas presents and live out his dream of going to all the theme parks in Orlando.Levi Shepherd died at nine years old in 2022 from Lennox-Gastaut Epilepsy and IHPRF syndrome.After losing Levi, his mother Jacquelyn Shepherd toldshe's passionate about giving back to the same organization that gave her peace of mind during the hardest part of her life.
Shepherd added that this fundraiser does more than support other families across Northeast Florida, but gives her peace in her own journey with grief.
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