Support groups have popped up across the country as more Black Covid long-haulers say they’ve had difficulty receiving treatment. “I would come in with notes of my symptoms and share these symptoms with these doctors and they would not hear me.”
“Sometimes it can be overwhelming when you go see a doctor,” Assoumou said. “Take good notes and write down your symptoms over a certain period of time so when you’re in the office with the doctor you have your information ready and organized. Document your own history in your own words,” Assoumou said, adding that patients should“Inquire about these multidisciplinary clinics that help streamline things because they’re like one-stop shops where you get to see multiple specialists.
” One member, Joncquil Hope, 38, of Campbell, Ohio, said she joined Hall’s support group earlier this year after contracting Covid in December. She said she suffered headaches, fatigue and brain fog, and still struggles with her memory. In the group, she’s able to openly discuss her symptoms while learning about new ones that may occur.
Witvliet said Covid researchers may not understand the particular struggles of women of color. “We’re not honing in enough on how the social determinants of health are going to impact the recovery process — and that’s going to look different in different subgroups. And I think that that’s like an elephant in the room that’s not being discussed,” she said.
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