RARE DISEASES NewsLatest News On RARE DISEASES Project Valentine: Spreading Love to Children with Rare Medical Conditions2/6/2025 3:03 PM Our Journey with Marfan Syndrome: A Family's Leap of Faith2/1/2025 4:18 AM Living with an Ultra-Rare Inherited Cholesterol Condition: One Family's Story1/21/2025 1:07 PM Gene Therapy Shows Promise in Treating Batten Disease Symptoms in the Gut1/16/2025 8:57 AM I Was Sick For Years Before Doctors Could Figure Out Why, And I Want To Know Who Else This Happened To1/15/2025 6:30 PM A Jazz Musician's Journey: How Genetic Sequencing Saved His Life1/15/2025 12:44 PM Research Scientist Position at ISAS for Rare Disease Proteomics1/2/2025 9:28 AM Test Your Knowledge of Bizarre Medical Case Reports12/27/2024 10:20 AM Holiday Cheer Brings Magic to Hospitalized Kids12/24/2024 9:51 AM Botulism Outbreaks in Europe Raise Food Safety Concerns11/8/2024 4:32 AM Opioids May Harm Reproductive, Bone, Adrenal Hormone Health10/29/2024 7:19 AM Novel Drug Targeting C3/C3b Shows Benefits in Rare C3 Glomerulopathy and Primary IC-MPGN10/29/2024 2:45 AM Sustained Control with Investigational Monoclonal Antibody for Myasthenia Gravis10/16/2024 5:14 PM Radiotherapy Cuts Myeloma Risk in Rare Head and Neck Cancer9/27/2024 3:12 AM AI's Drug Revolution, Part 2: New Uses for Old Drugs9/11/2024 7:16 AM Boy Lives in Permanent Shade to Survive Dangerous Sunlight7/18/2024 10:28 AM Virtual Collaboration Boosts Rare Cancer Care in Europe6/27/2024 4:30 AM Prion Disease Is Spreading in Deer. Here's What We Know About the Risk to Humans6/19/2024 5:10 AM Europe Approves Paroxysmal Nocturnal Hemoglobinuria Drug4/23/2024 9:32 AM Two Hunters Died of Rare Prion Disease. Doctors Suspect a First-of-Its Kind Deer Transmission4/20/2024 6:20 AM
