A family picked the Pacific Northwest as the destination to explore before their son goes blind.
An Arizona family is making sure they see as much as they can in a race against blindness, and one of their topThey are also chronicling their journey to raise awareness about a disease that could soon rob their son of his vision.
They know that their 9-year-old son, Luke, will go blind and everything he sees will only be in his memories. So the family is trying to create those memories and burn images into his mind. It’s a race against blindness, and the family is turning the phrase “I can’t unsee this” on its head. Stephen and Kristina Johnston, and their children Luke, 9, and Tyler, 7, used part of their eight-week tour to visit our region, taking in Olympic National Park, walking the sands of the Washington Coast, and soaking in the Hoh Rainforest. Kristina admits the beauty of the Pacific Northwest is unique to them.
The medical situation is very serious, but Luke is also a kid and had one thing on his mind besides the trip of a lifetime: “I have a ginormous Pokemon card !” The family may be touring their dream destinations but they are also trying to call attention to the condition that is afflicting their son. Steve says raising awareness has a very clear goal.The Johnstons say a UK pharmaceutical company could launch human trials for treatment in 2024 that could save eyesight for thousands of children.
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