We need to start being more vocal about the health and mortality rate of those with intellectual disabilities and autism.
lived, a safe place they called home as their own families visited now and again. We as the staff, their care coordinators, and house managers, doubled both as their caregivers and in some ways, their family members too.
I was a twenty-something living the stereotypical college student kind of life — hanging out with friends on Friday nights instead of studying all night, storing up my dirty clothes to wash when I went home, surviving on ramen noodles and potato chips. But I also took a special pride in my job, showing up for young men who had no real prospects aside from what we were providing for them as their staff: safety, stability, a social life, and medication management.
Today, as we look at what the pandemic is doing to people we love, family members and friends, how devastatingly painful it is for us all, we are forgetting about another population of people: those with intellectual disabilities and autism who often live in a residential and/or group home settings, like the young men I helped care for in college. It is this demographic of individuals, those with these particular disabilities, that we are not talking about during this pandemic.
In a study that looked at group homes within New York and Pennsylvania, the findings were astonishing. Specifically, the rate of death among people with autism who contract COVID-19 die at higher rates than other populations according to a study conducted byAccording to the study, in New York State , people who contracted COVID-19 and had an intellectual disability died at a rate 2.
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