Volley for a Cure: Buckeyes helping a local family find a cure for rare genetic disease

Landon Mcchesney News

Volley for a Cure: Buckeyes helping a local family find a cure for rare genetic disease
Ohio StateRare Genetic DiseaseLandon A Cure
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Landon has a rare genetic disease that impacts his speech and mobility. The program has since adopted Landon as a part of their team, becoming family.

Landon McChesney is heading into his third season with the Ohio State Women's Basketball team after the players fell in love with his positive attitude and sunny disposition.The program has since adopted Landon as a part of their teamThe more eyes we bring to it, the more help he gets," said Ohio State guard Kennedy Cambridge. "The more excitement we get around it, maybe we can find something to help him.

Landon was seen passing a basketball back-and-forth with Cambridge and other players -- a sign of the progress he has made since being diagnosed with his rare genetic disorder that caused mutations in his TBCD gene. He’ll sit on the sidelines, and he is completely dialed in . He watches every play," said McChesney. "When Rikki went down during a game, he started crying, thinking she was hurt. He’s not only aware of the actual game and tracking the plays, but also aware of the emotional state of his best friends, the players. It’s been huge."

The foundation is currently raising money to fund a "Gene Therapy" project at Ohio State, but Jaren said they have made significant progress in helping other families across the country.

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