A Utah County community rallied around a boy with a rare form of terminal brain cancer. Erica and Spencer Shemwell of Highland said their 5-year-old son, Caleb, was diagnosed with DIPG in November.
HIGHLAND, Utah — A Utah County community is rallying around a boy with a rare form of terminal brain cancer called diffuse intrinsic pontine glioma .
“No parent ever wants to be told their child has cancer, let alone tell them there’s no chance of survival," said Erica.“The average prognosis from diagnosis is 8-11 months with treatment," said Erica."So we’re hoping we’re in that small percent where we get a couple years, but preparing for less." “Pediatric brain cancer is the least funded out of all cancers, and we just really don’t want these kids to feel like they don’t have any hope," Erica said. “Every child deserves a chance, not just because it’s rare, right? You would want to give that type of opportunity to every kid.”
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