A new report suggests that the needs of family caregivers are often inadequately met by US transplant centers.
Family caregivers provide crucial support to patients before and after a life-saving organ, stem cell , or bone marrow transplant. In recognition of the vital nature of this role, transplant centers often require patients to identify a dedicated caregiver to be considered a good transplant candidate.
This can come at a steep cost to the caregivers, who may experience financial strain and neglect their own health needs. The demands on their time, stress of the responsibility, and uncertainty about the outcome make transplant caregiving particularly mentally taxing, said report advisory committee member Camilla Nonterah, PhD, a transplant researcher and associate professor of health psychology at the University of Richmond in Richmond, Virginia.
“Without ongoing engagement with the family caregiver and adequate assessments, it’s hard to identify their most critical needs,” Resendez said. “We won’t discharge our patients until their support systems have been educated” about what to look out for and when to call the medical team, she said. In addition, centers may not have the financial resources or staff to evaluate and support caregivers throughout the transplant process.
Standardize the collection of caregiver data across transplant centers — perhaps in electronic health records — to assess and document caregiver needs.
Cardiomyopathy Transplantation Of Stem Cells Transplantation Of Hematopoietic Stem Cells Hematopoietic Stem Cell Transplant Stem Cell Transplantation Stem Cell Therapy Stem Cell Haematopoietic Stem Cell Transplant HSCT Hematopoietic Stem Cell Transplantation (HSCT) Haematopoietic Stem Cell Transplantation (HSCT) HSCT - Hematopoietic Stem Cell Transplantation
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