Diseases like endometriosis would have a cure if we could talk about them and study them without shame. | Opinion
Women with endometriosis are often told they are pain-pill seekers, scam artists trying to take advantage of the health system. They are called “disruptive,” “crazy,” “faking it” and “psychosomatic.” They are told that their pain may be in their heads and to move beyond it. To stop being—well, stop being a woman. We are talking about young teens and women with endometriosis who want a diagnosis, effective treatments and compassionate care. There is no cure, and these women deserve one.
Especially now, as women’s reproductive health has been propelled into the national spotlight, it is time to freely talk about and investigate menstruation and menstrual blood to promote women’s health. As a result of chronic pain, many teens and young women with endometriosis miss school, preventing them from achieving their full potential. When older, these people have difficulty getting promoted or keeping their jobs, because of excess sick days. Without a job, they lose their badly needed health insurance, and without insurance their pain goes unchecked. Some have told me they are unable to have or maintain intimate relationships.
With serious efforts by diverse, collaborative researchers from academia and industry, and engaged study participants, menstrual blood will be developed into a clinically useful resource for better understanding uterine health and uterine dysfunction, as well as for diagnostic purposes. It will no longer be considered solely as trash—something to be tossed every month—but as a vital biological specimen for women’s health.
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