Third-grader Connor Cagle was nervous about his echocardiogram. He wiggled in the reclining chair in the exam room at the Neurology & Neuromuscular Care...
The private, non-profit center sees patients with a range of conditions, including spinal muscular atrophy and Becker muscular dystrophy, a form of muscular dystrophy that’s typically less severe than Duchenne.
Castro doesn’t turn patients away, even if they are uninsured or underinsured. That’s a common occurrence in Texas, which has the highest uninsurance rate of any state.“We need people to get interested, to donate. Anybody that can give us a hand to try and help these people long-term,” Castro said. Brandon should qualify for Social Security because of his Duchenne diagnosis, but the process of proving he has a disability can take months. Discouraged by repeated denials to get him on Medicaid, Margaret, a Lewisville ISD teacher, assumed she’d face a similar battle with Social Security.
She’s making progress on the latter: Manzuri will soon provide some pulmonology services to the clinic’s patients.“Oh, he’s anxious all the time,” Margaret said. He takes another dose of Metformin and lisinopril, a heart medication, before bed. Every Friday, Saturday and Sunday he takes steroids that help stave off the worst of the disease, although the medication comes with its own unpleasant side effects.
Connor hasn’t hit that stage yet, but Kathryn spent nights awake crying and yelling at the world after her son was diagnosed. She originally thought the worst-case scenario for his symptoms – falling, difficulty getting up from a seated position – would be a brain tumor. She was wrong.
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