Michelle Groeller's six-week-long headache journey culminated in a rare Chiari malformation diagnosis, highlighting the importance of recognizing and addressing underlying conditions. The 17-year-old's story, shared on TikTok, sheds light on the challenges of diagnosis and the impact of rare conditions like EDS and Chiari malformation.
Michelle Groeller experienced a relentless headache last summer that lasted over six weeks. Seeking answers, she underwent medical tests, revealing a rare condition that affects less than one in 1,000 people.In her words, shared on TikTok : 'Having horrible headaches every day and sensitivity at the back of my head.' She accompanied these words with a copy of her brain scan and text explaining that the orthopedic discovered her 'brain was falling out of the back' of her head.
The procedure revealed severe and unexpected damage, necessitating reconstruction.'I had a gut feeling that something was wrong,' Moulton said.Shortly after, severe hip pain prompted a second opinion and X-rays revealed her hip joint was bone-on-bone. These issues, now understood as symptoms of EDS, were caused by the disorder's impact on connective tissues, leading to joint instability and degeneration over time.'It was missed her whole life,' Moulton said.
Chiari MALFORMATION EDS CONNECTIVE TISSUE DIAGNOSIS HEADACHE
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