Cot deaths have inspired much awareness work - but what about when an older child dies unexpectedly?
Last summer, his mother Julia put him to bed as usual. An hour later, she went to check on him. He had died, six weeks away from his second birthday, without crying out for help or making any sound at all.
I started screaming because he was shaking and he'd started foaming at the mouth. I thought he was dying. After a couple of minutes I'd thought he had because he went blue. The ambulance came really quickly. They took his temperature and he didn't have one so they took it really seriously. After that first seizure, I felt like it took something from him. When we picked my daughter up from school he would say "bye" to everyone, it was really cute, and after the seizure he stopped doing that, he never said bye again. He was picking up more words and they said not to worry but I did. I just knew something wasn't quite right.He was at nursery, I was at home. I ran straight there.
A high temperature caused by an infection can stimulate the release of cytokines, proteins that affect the parts of the body responsible for regulating temperature. For some children, high levels of cytokines may temporarily "scramble" the workings of the brain and nervous system, triggering a seizureA couple of months later, he became uncoordinated and his right eye was a tiny bit lower. He fell down the front step; it was just a toddler fall, so we carried on and went swimming.
He had had a temperature that day so I kept him off nursery. He perked up in the afternoon and I thought he was getting better; he only had enterovirus which apparently is a really common, mild illness.
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