'The new global research from Global Blood Therapeutics (GBT), aims to highlight the ‘unmet needs’ of sickle cell disease patients, as researchers say international healthcare systems continue to fail people from minority ethnic backgrounds.' ✍️ Nmozz
Last year’s report found evidence of sub-standard care for sickle cell patients admitted to general wards or A&E, low awareness of sickle cell among healthcare professionals, and clear examples of inadequate training and insufficient investment in sickle cell.
‘I’ve had nurses tell me I’m exaggerating my pain, others not listening to me when I’m explaining what works for me and what doesn’t. It makes me feel less than, I feel like maybe my pain isn’t valid and I’m just wasting time.Aisatu says seeing how sickle cell effects her family and friends is very hard to deal with.‘People don’t understand what sickle cell is and how different environments can even cause someone to have a crisis.
It is a lifelong blood disorder that occurs when a person inherits sickle cell genes from both parents. Patients with SCD experience progressive, lifelong complications and severe morbidity, including damage to major organs such as the liver, kidneys, lungs, heart and brain, which contributes to early death and can erode the potential of patients and their families.Speaking to healthcare professionals, the study found that almost three quarters said that patients of lower economic status can be ‘more difficult to treat’.
‘For me, it really is about understanding, compassion, humility, and then working together to address things as they come up.’
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