Parents of children with Type 1 diabetes are pushing for schools to remotely monitor continuous glucose monitor (CGM) alarms, citing safety concerns. While CGM technology has revolutionized diabetes management, many schools remain resistant, citing staff shortages and technical issues. The article highlights the struggle of parents like Taylor Inman and Julie Calidonio, who have faced limited support from their children's schools. It also discusses the legal implications, with Calidonio filing a complaint with the U.S. Justice Department alleging violations of the Americans with Disabilities Act.
Ruby Inman attends class with her diabetes support dog, Echo. Ruby’s mom, Taylor Inman, a pediatric pulmonologist, says Ruby got little help from her San Diego public school after being diagnosed at age 6 with Type 1 diabetes and starting to use a continuous glucose monitor, which triggers an alarm if her blood sugar is too high or low.
Parents say school nurses or administrative staff should remotely monitor CGM apps, making sure someone is paying attention even when a student is outside the classroom — such as at recess, in a noisy lunchroom, or on a field trip. With the proliferation of insulin pumps, many kids can respond to problems themselves, reducing the need for schools to provide injections as well.
In September, Calidonio filed a complaint with the U.S. Justice Department against the district, saying its inability to monitor the devices violates the Americans with Disabilities Act, which requires schools to make accommodations for students with diabetes, among other conditions. She is still awaiting a decision.
CGMs today are used by most of the estimated 300,000 people in the U.S. with Type 1 diabetes under age 20, health experts say. Formerly known as juvenile diabetes, it is an autoimmune disease typically diagnosed in early childhood and treated with insulin multiple times a day to help regulate blood sugar. It affectsunder 20, according to the American Academy of Pediatrics. The condition, in which the pancreas does not produce sufficient insulin, can also appear later in life.
Nelson, who also manages school nurse programs in Washington state, said schools often must balance the students’ needs with having enough administrative staff. In San Diego, Taylor Inman, a pediatric pulmonologist, said her daughter, Ruby, 8, received little help from her public school after being diagnosed with Type 1 diabetes and starting to use a CGM.
CGM alarms can be “disruptive to the student’s education, to classmates and to staff members with other responsibilities,” Taras wrote. “Her blood sugar is better controlled, and she is not scared and stressed anymore and can focus on learning,” she said. “She is happy to go to school and is thriving.”
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