S2 Episode 1: Psoriasis Advocacy: A Model for Every Chronic Disease?

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S2 Episode 1: Psoriasis Advocacy: A Model for Every Chronic Disease?
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.DrSteveFeldman and leahmcchoward, President & CEO of NPF, discuss how an unseen and unheard patient population has begun to step out and speak up — at the US Capitol and beyond. psoriasis DermTwitter

. I'm your host, Dr Steve Feldman. This is the first episode of our second season, and today we'll focus on advocacy for people with psoriasis. Patients with psoriasis need more than just the right diagnosis and the right treatment. They need to be educated about their options. They need to know how to manage the day-to-day impact of the disease; navigate interpersonal and social impacts; and get access to— not just to drugs, but to doctors who know how and want to help.

today. I'm going to share some practical tips and lots of stories, and I am really looking forward to today's conversation.That sounds super. I wonder if I should just throw out my plan and let you start sharing some of those tips?I'm happy to do that. I think as we jump into this discussion, one of the things that really has me excited is the progress that's been made in our space and the better health outcomes that people who live with psoriasis today can achieve.

, where someone can sign up on our website to get more information about clinical trials in their area.I think we think of things like that primarily as helping people find a study, but it's probably equally valuable helping to get new drugs approved by making those studies more feasible.Certainly. From our perspective, we want to see as many members of our community participate in studies as possible.

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