In Africa, there is a shortage of specialists and a lack of financial support for famlies who can't afford therapy. We look at how three families are coping.
In Africa, there is a shortage of specialists and a lack of financial support for famlies who can't afford therapy. We look at how three families are coping.Mary Gachoki had learned about autism spectrum disorder from a caregiving course she'd taken in college. When her son was 2 years old, she recognized that he was displaying traits associated with this neurological condition.
"Many parents, especially in the rural areas, need to know that an autistic child is a normal child. They should accept them for who they are and support them in life, but most importantly, they need to learn more about autism, understand autism, and manage their expectations," says Kerubo. Specialists who provide therapy for children with autism are in"limited in supply" in Africa – and inaccessible to the rural poor, he adds.
The parents brought him for diagnostic testing after he began regressing at age 2 – losing his speech, showing signs of antisocial behavior and hyperactivity and exhibiting behavior associated with autism, such as pulling his ears. Ndebu says her siblings had suggested the doctor's visit. She has gone on to join Autism Mums KE, a caregivers' WhatsApp group with over 700 members, for support.Her goals are to raise awareness about autism, build a repository of online information, train caregivers and provide support systems for them. An upcoming zoom session is entitled"Accepting and Embracing the Diagnosis."
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