Pennsylvania boy is headed to California for a clinical trial that might help save his life

A trip to California for a clinical trial in hopes of saving Jax Ramirez's life from a rare autoimmune syndrome will be an emotional and financial strain with lots of hope, but no guarantees.

A trip to California for a clinical trial in hopes of saving Jax Ramirez's life from a rare autoimmune syndrome will be an emotional and financial strain with lots of hope, but no guarantees.

“It gave me some level of hope because up to that point, I was convinced that he had no matches anywhere,” Ramirez said. “But then I was like, ‘No, they do exist. There are people in this world that match him.’ So I knew I just had to keep pressing on and doing what we’ve always done, which is to try and save his life.”, led by a world-renowned expert in IPEX, and where Jax’s local doctor had moved.

Disappointed, but more determined than ever to find a bone-marrow match, the family continued holding events and registering new donors.

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