Charlie Rooke lost his battle to the genetic disorder just weeks after his brother Thomas was stillborn.
The inherited condition causes muscle weakness as well as respiratory failure that typically begins in infancy.he and Sarah Rooke had"suspicions" something was wrong after Charlie was born. They noticed he would suddenly stop breathing.:"In May 2019, I got a phone call from Charlie's mum while I was in work to say he was choking and had been resuscitated in the Cherry Tree Centre by a passing nurse.
In November that year, the family was told that Charlie's condition was terminal. At the time Sarah Rooke, 35, was pregnant with Charlie's brother, Thomas. Hoping to raise funds for children's hospice Claire House, Andy Rooke has undertaken a challenge to build a snowman on top of the highest mountains in England, Scotland and Wales., an iconic winter-themed children's animation.
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