One infection could kill our baby girl - but a simple act could change her life

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One infection could kill our baby girl - but a simple act could change her life
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One common infection could kill our baby girl – but one simple act could change her life forever

“Then the hospital found that one of her white blood cells was completely wiped out, she was very sick and it was at that point that the doctors mentioned a bone marrow transplant.”Then when she was just one her rash appeared again and more tests found that she had a rare immunodeficiency.

The issue now Amina says, is that doctors need to find a way to continue to treat Shahera so she can do all the things that other little girls can. Finding a donor though will be a struggle for the family as just 20 per cent of patients from BAME backgrounds find the best possible donor match.Finding a donor would be a big relief for us, because hopefully it will maker her betterShahera is of Bangladeshi origin and Amina said it’s difficult for the family to find someone from their community.

Amina said that the family are not only campaigning to find a donor for Shahera but for others in the same situation.Little Shahera has to have antibody immunoglobulin treatments to keep her wellPeople are given this treatment when their immune systems do not produce enough antibodies.Charity PID UK states: "Clinical trials have shown that for people with immune deficiency, immunoglobulin treatments result in fewer infections, and those infections that do occur tend to be less serious.

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