People feel uneasy about epilepsy and it appears mysterious but we must be more vocal to erase the stigma surrounding it.
The onset was sudden, the impact was shocking. We quickly lost count of how many seizures she had. A typical one might last forty-five seconds. The longest was 30 minutes.
And yet we still struggle with the words. There is something about epilepsy that makes people uneasy, beyond what we typically see with other conditions. There’s something mysterious about it, even for those of us who have been deeply affected by the disease. More than three million people in this country have epilepsy. Treatment success rates vary radically, but there have been advances. "We now believe that 30 to 40% of epilepsies are genetic, and that number may increase as our understanding develops," adds Dean. all hold promise. Because seizures can be so disruptive, new rescue medications can help those with epilepsy achieve a greater sense of independence.
We strongly advocate for its consideration after two antiseizure drugs have failed," Kossoff says. While he sees a wide variety of outcomes, he also knows firsthand how patients and parents react to an epilepsy diagnosis. "Yes," he says, "unfortunately, stigma is definitely an issue. Adolescents with epilepsy specifically are often unwilling to discuss their epilepsy with peers.
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