Mum fears for son with life-limiting rare disease as hospital appointments cancelled in coronavirus crisis
A DESPERATE mother has revealed her seven-year-old boy with a life-limiting disease is suffering in pain after his hospital appointments were cancelled due to Covid-19.
It affects around 2,500 people in the UK, most of whom are boys and have an average life expectancy of 30 years. The less people contracting the virus and using the NHS means the NHS can get back to providing the care and support to people like Fraser who rely on it to be able to live their everyday lives.The company secretary said that Fraser uses a walking frame every day to exercise his muscles and has custom made splits to enable him to stand and use the walking frame - however these are now too small and are cutting his feet.
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