More than 42,000 people are living with early onset dementia in the UK Families of those diagnosed with early onset dementia told theipaper there is a devastating lack of targeted support AlannahFrancis1 reports
Holly Braithwaite’s daughter, Alba, was just one when her mother was diagnosed with frontotemporal dementia, a rare condition that causes personality and behavioural changes.
Speaking about the challenges the family have experienced in accessing appropriate social care provision, Mr Braithwaite, a teacher, said: “Ever since her diagnosis, Holly doesn’t tick the box for anything. She doesn’t really fit anywhere. Mental health passed us on to older persons because of the dementia.
Services for most people with dementia, such as memory cafes, day centres and care homes, do not cater specifically for the needs of younger people with the condition, many of whom don’t initially experience memory loss and maintain their levels of intellect for a considerable time. Eventually, Mr Braithwaite found a residential care facility with a bungalow where his wife could stay and receive treatment. It meant he and Alba, who is now three, could spend time with her privately.
, Ms Braithwaite would sometimes be able to meet them for just two minutes before she would need to leave.Today, Ms Braithwaite lives in a residential facility with on-site nursing staff. The set-up means Mr Braithwaite and Alba can visit and spend time with her “like a normal family”, he said. He remains frustrated by the time the family missed out on because of funding cuts.
“The label of dementia doesn’t cover someone with a child like Holly. It’s trying to get through to the decision makers to look at the person and not the diagnosis.”experienced dementia symptoms“I’ve had cats all my life but I forgot the word cat… everybody thought this was funny but there were lots of words that I couldn’t remember.
United States Latest News, United States Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
New State Pension pay rates from next week could see older people get up to £815The honouring of the Triple Lock rule means that older people are set for an income boost of up to £75 per month
Read more »
Apple might block older iPhones from using iMessage, FaceTime, and other servicesIt might be time to finally ditch your iPhone 4 as Apple could soon block it from services like iMessage
Read more »
Mortality postponement and compression at older ages in human cohortsA key but unresolved issue in the study of human mortality at older ages is whether mortality is being compressed (which implies that we may be approaching a maximum limit to the length of life) or postponed (which would imply that we are not). We analyze historical and current population mortality data between ages 50 and 100 by birth cohort in 19 currently-industrialized countries, using a Bayesian technique to surmount cohort censoring caused by survival, to show that while the dominant historical pattern has been one of mortality compression, there have been occasional episodes of mortality postponement. The pattern of postponement and compression across different birth cohorts explain why longevity records have been slow to increase in recent years: we find that cohorts born between around 1900 and 1950 are experiencing historically unprecedented mortality postponement, but are still too young to break longevity records. As these cohorts attain advanced ages in coming decades, longevity records may therefore increase significantly. Our results confirm prior work suggesting that if there is a maximum limit to the human lifespan, we are not yet approaching it.
Read more »
Older people are being excluded from democracy by changes to the postal voteOlder people are being democratically excluded by changes to the postal vote 🖊️ paulwaugh via ipaperviews
Read more »
Long-term protection and high efficacy of bivalent BA.1 booster confirmed in older adultsLong-term protection and high efficacy of bivalent BA.1 booster confirmed in older adults Coronavirus Disease COVID bivalent Efficacy Vaccine medrxivpreprint UKHSA LSHTM imperialcollege
Read more »
Infected blood inquiry: 'Compensation should recognise wider families'Katie Walford's father died in 1998 after contracting HIV while being treated for haemophilia.
Read more »