Lloyd Rochez was diagnosed at birth with trisomy 13, a genetic disorder that can involve severe learning problems and affect nearly every organ. No one thought he would live past a couple of weeks, but he has defied the odds and will turn 20 this summer.
. That same health care provider told her that the next step was to run some tests and do more bloodwork.
“After he tried to explain trisomy 13 to me, the downside and the prognosis, at the end he said, ‘I don’t know if you believe in some supernatural being, but if you want to ask that someone for a miracle, I would advise you to do that. Pray for your miracle, and you may get it.’” “I was this inexperienced first-time mom who had been told to watch for all sorts of things, like making sure he didn’t turn blue at night,” she says. “I spent so many sleepless nights, but I was dedicated to Lloyd.”“I decided that I wasn’t going to live each day as if he was going to die,” she says. “I decided, instead, to enjoy him every day.”
“I started screaming ‘my son is dying,’” Nunez recalls. “The nurses put me in a room, and I think I was in there for 10 minutes, but it felt like an eternity of me screaming.”“That was our life,” she says. “He would have respiratoryBut she kept the faith, and since then, Lloyd’s health has mostly stabilized. Nunez can care for him at home on her own and with family members who help out from time to time.
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