A woman's viral video highlights the benefits of creating a comprehensive medical binder, which includes lab tests, X-rays, and reports. The binder helps her advocate for herself, avoid unnecessary tests, and secure a genetic diagnosis after years of struggling to be heard by doctors.
If you’re someone who frequents the doctor’s office, chances are you’ve had a negative experience managing your records, getting in touch with providers, or treating your concerns — especially if you’re athis past year with a solution that has helped her manage negative experiences and wasted time with doctors — and eventually get a genetic diagnosis after 14 years of navigating many physicians and a complex medical history.that has since amassed over 4.
For those who worry that the binder might waste doctors’ time, Wetz emphasized that it’s not meant to be read “front to back.” Instead, it serves as a practical, time-saving tool she can quickly reference to provide doctors with information when needed. Wetz also said her reports shifted from saying things like “patient verbally reports receiving a diagnosis” to “she has a diagnosis” based on the evidence in her binder. “I’m taken seriously now, and doctors are aware that their report will go into my binder next, which results in fewer errors,” she said., she had the necessary tests to quickly rule out other conditions. “By presenting reports from my CT scan, echocardiogram, ECG, Holter monitor, and blood work, I was diagnosed on the spot.
Still, while most feedback about Wetz’s medical binder has been positive, others pointed out that the onus to track records and advocate for their concerns shouldn’t only be on the patient. “We have to become a Dr to get other Drs to listen 😭😭😭😭,” one person wrote. Bervell acknowledged that, unfortunately, this stigma is a real possibility. He explained that some healthcare providers might view a binder as a sign of “over-preparedness” or health anxiety. “Patients should be aware that while many providers appreciate well-prepared patients, some might not,” he told BuzzFeed. “A binder could be seen as ‘malingering’ by certain biases in healthcare, which unfortunately still exist.
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