A mother whose daughter had ME says a hospital failed in its duty of care.
A mother whose daughter had myalgic encephalomyelitis said her death was "wholly preventable" and her local hospital failed in its duty of care.
Maeve Boothby-O'Neill, 27, had the condition since she was 13 and was being treated at the Royal Devon and Exeter Hospital before she died at home in Exeter on 3 October 2021. Her mother, Sarah Boothby-O'Neill, told the inquest in the city: "I believe the evidence shows Maeve is likely to have died from malnutrition and dehydration because she had severe ME.She said to the coroner: "I am hoping the inquest into her death will explain how she died.
"Without special nutritional intervention, Maeve's deterioration could only continue, yet her continual deterioration across and throughout three admissions seemed to go unnoticed by the hospital," said Ms Boothby-O'Neill."If she had to die from starvation with severe ME, she wanted it to be in the familiarity of home and the care of those she loved."
As her full-time career, her mother told assistant coroner Deborah Archer she did everything she could to support her daughter and said this could happen to someone else."The whole system did not work for Maeve because she died."However it was "too late for that" as hypersensitivity made all touch "excruciatingly painful".
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