The condition often fatigues and places the afflicted in day-to-day pain, but since this is an 'invisible disability,' patients say they've also endured real-world stigma.
An aspiring gymnast wasn't able to go forward with the sport she loves due to what is being called an invisible disability. Now, a Houston clinic founded by someone also afflicted with the syndrome is giving patients hope.Tuesday marks the 32nd anniversary of the Americans with Disabilities Act , a civil rights law that prohibits discrimination and ensures that people living with disabilities are afforded the same opportunities as everyone else.
She remembers constantly having pain in her back and feet ever since she was a little girl, and would experience vision loss while standing up. After starting college, she began having issues with her G.I. tract. Bloom was often fatigued, feeling breathless after minimal physical activity, and experiencing fainting spells. But she would always power through school and work, concerned about how others would respond to her invisible disability.
"It was very validating. It answered a lot of questions that we had. Looking back now, the last six years have been a lot more difficult than prior to my diagnosis. If I didn't have that, it would have been so much harder with the complications that have come up since then," Bloom said. "I feel like this was something that I was put on this earth to do and it was something, easy or not, where I could give back to others," she said. "I was born with a broken clavicle and had some pretty significant hip disease as a child, where I had to wear braces on my legs at night. The medical field didn't really understand this disorder when I was born and they don't really understand it much more now.
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