A personal story of living with beta thalassemia, a rare blood disorder, and the challenges faced due to regular blood transfusions and iron overload.
When I was a baby, I was diagnosed with beta thalassemia , a rare blood disorder that makes you unable to produce enough healthy red blood cells. Back then, the only way for me to survive was to receive regular blood transfusions . I had my first one at just 8 months old, and had them every three to four weeks for many years to follow. A side effect of being transfused so often is iron overload , which can lead to a number of health problems , including kidney and liver issues.
By the time I was 5, I had to be on medication to lower the excess iron. At the time, this medication could only be given through injections. I started with a port and eventually got an IV pump, and my parents would put a needle in my stomach five to six nights a week. I had to sleep with the medicine pumping through me, which meant not being able to sleep over at friends’ houses. It was a lot of responsibility for a little kid. Fortunately, by the time I graduated high school, I was able to get an oral version of the medication. I went off to college three hours away from home
Beta Thalassemia Blood Disorder Blood Transfusions İron Overload Health Problems Medication İnjections Personal Story
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