🎙️ Listen as experts discuss the importance of shared decision-making in managing patients with Rett syndrome. RTT MedTwitter MedEd 📝
. So let's begin. Paige, as you pointed out, you're a mother of a daughter who has Rett syndrome. I'd love to hear a little bit from you just about your experience and your daughter.Well, thank you. I'm happy to share this story because Katie has classic Rett syndrome and while her diagnostic journey and progression of symptoms sounds quite familiar to many others with Rett syndrome, it's also very unique to her, and I think we find that with most children with Rett syndrome.
But as you point out, they didn't really have particular knowledge about it, but they were interested in understanding and working with you. I think hearing that, and if you could give some advice for parents and thinking what is helpful with that interaction with the clinicians, it's helpful to achieve this sort of relationship. How would you advise people on that?Yeah.
United States Latest News, United States Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Signs and Symptoms of Rett Syndrome: A Focus on Early Diagnosis📍 Listen to Rett syndrome experts as they discuss the signs and symptoms of RTT to prompt an early diagnosis. CME MedEd 🖥️
Read more »
Pfizer signs agreement with China on improving health coverage in the countryU.S. pharma giant Pfizer has signed an agreement with China to cooperate on improving the country's health coverage, according to the company.
Read more »
AZ drought conditions improving, though some areas have long way to goRunning dry is something Arizona is trying to avoid. Just a few months ago, nearly 87% of the state was in the abnormally dry or worse category. abc15
Read more »
What vital signs will show us that the Great Salt Lake is improving?Utah's record-setting winter has been exciting for both skiers and lawmakers working to revive the ailing Great Salt Lake. Gov. Spencer Cox told reporters in mid-March that lake levels were up 2 feet and they were hopeful for 5 feet more.
Read more »
Improving life in the bedroom on the road: Rocking the RV Life podcastJeff and Patti Kinzbach discuss products and ways to make the RV bedroom more comfortable. It’s all about making your space feel like home – important after a long journey.
Read more »
Watch: A conversation on improving American public health preparedness.BioCommission’s Dr. Asha George on improving surveillance and data modernization in public health preparedness efforts: “We have to stay on top of it ... there’s no choice.” Watch more: AxiosEvents
Read more »