I knew something wasn't right with Finley, but we were dismissed by doctors again and again.
to see more of our trusted coverage when you search. It started with something that didn’t feel like a big deal. A couple of days after my son Finley’s first birthday, I noticed I was changing his clothes more than usual.
Three or four times a day from being sick. It struck me as odd—he had been a sickly baby when he was younger, but once he started solids, that had settled. I told myself he might just be coming down with something. The next day, we were out with friends when it escalated.
He began projectile vomiting everything he ate, so I phoned 111 on the way home. They weren’t overly concerned and advised me to visit a pharmacy in the next 24 hours. At the pharmacy, we were told the same thing—he’d just turned 1 and was probably adjusting to having more cow’s milk. If it didn’t improve, we should see a general practitioner.and told us to cut it out.
I remember asking, “All dairy? ” and being told no—just cow’s milk. Finley was still being sick, and then the rashes started. They would appear suddenly and disappear just as quickly.
It was as though he was reacting to everything—even water and wipes. When I raised it again, the focus shifted entirely. I was told he might have “slapped cheek syndrome” and to avoid pregnant people. By then, the sickness had changed too.
It wasn’t happening after meals anymore—it was every morning. He’d wake up after a full night’s sleep, having eaten nothing, and be violently sick. We went back again and again. Eventually, we were sent to A&E at North Durham Hospital, where we were told it was likely just a stomach bug.
We went home. Then one day, Finley had what looked like a seizure while napping next to me. I called 999, terrified. By the time help came, I was told he seemed fine and didn’t need an ambulance.
Instead, they booked us into an urgent clinic hours later. I wasn’t comfortable waiting, but we went anyway. Each time, we left without answers. At one point, Finley started vomiting blood.
I rushed him into A&E, and I watched as it dripped down his chin. A nurse told me it looked like Weetabix. I remember saying, “That’s not Weetabix. He hasn’t even eaten it in weeks.
” A doctor later suggested it might have been a nosebleed during the night. That was the moment I reached my limit. I told them, “If you’re happy sending me away with that explanation, I’ll go somewhere else. ”We eventually went to a different hospital.
At first, we were , but by that Friday, he was still being sick—and still bringing up blood. Finally, they inserted cannulas and transferred us to the Royal Victoria Infirmary. We were initially placed on a neurological ward because there was no room elsewhere. That decision may have saved his life.
Within hours, the team there began to question whether this was really a stomach issue at all. Finley’s symptoms—especially the morning vomiting—raised red flags. They arranged for a CT scan. I didn’t think anything of it at the time.
I was still convinced we were dealing with something related to his stomach. A doctor took us into a quiet room and told us the words no parent ever expects to hear: “There’s a tumor. It’s a brain tumor. ” For a moment, I genuinely thought they had the wrong child.
Finley was sitting on my lap. I looked at him and thought,"You’re not talking about my son.
" But they were. Within 24 hours, everything moved at a speed we hadn’t experienced before. Suddenly, we were surrounded by specialists—oncologists, surgeons, nurses. He was taken for an MRI early the next morning and then straight into surgery.
Watching him being put under anesthesia for the first time is something I’ll never forget. He was crying and fighting the mask, and then suddenly he was still. And just like that, we were expected to hand him over and not see him for hours, knowing he was about to undergo major brain surgery. When the surgeon came back, he told us they had managed to remove the entire tumor.
It had been sitting at the top of his spine, near the base of his brain. In that moment, we felt relief, but it didn’t last long. A few days later, we were told it was a rare and aggressive cancer called ATRT. My first question was,"Is he going to survive?
"From that point on, our lives became hospital routines, chemo schedules and constant uncertainty. Finley underwent surgery again for complications, had a reservoir inserted into his head for treatment and eventually had a Hickman line fitted for chemotherapy. Before all of this, I thought chemo was just one drug. It’s not.
It was round after round of different medications, weeks in hospital, brief stretches at home, and then straight back in again. The high-dose chemo was the hardest. He was being sick constantly, needed multiple transfusions, injections into his brain and endless monitoring. There were days he barely moved.
Days I thought, How can his little body take any more? He rang the bell earlier this year after finishing treatment. His latest scans have been clear. People expect that to feel like the end of the story—but it doesn’t.
With ATRT, there’s a high risk of relapse, especially in the first two years. We go for scans every three months, and every time, I hold my breath. When his oncologist told us his last scan was clear, I didn’t feel relief. I just thought, What about the next one?
Finley is 2 now. He’s in the middle of the “terrible twos,” running around, causing chaos, and—most importantly—being a normal little boy. I look back at photos from those early days, when we were being told it was milk, or a bug or something mild, and my heart breaks. If there’s one thing I’ve learned, it’s this: trust your instincts.
You know when something isn’t right. Melinda Garrett, 32, is mom to Finley with her partner 33-year-old Marc Robson. Melinda shares her son's story on social media @melindaajg, and is currently raising funds to create special memories as a family at Disney World.
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