'I’m angry, disappointed, and scared': Lupus patients say they desperately need hydroxychloroquine and that has been in short supply.
on March 31, and supplies never caught up with demand, even after the initial explosion of orders eased.
Life without hydroxychloroquine is hard for lupus patients, who usually suffer from joint pain, severe fatigue, and rashes. The FDA has approved the drug for decreasing flare-ups of the disease. According to the Lupus Foundation of America, about 1.5 million Americans have a form of lupus, and 90% are women.
When the medication was available, “I was in less pain, I was able to cook dinner, I was able to clean up,” Rodriguez said. “Now I’m not on it, and I'm looking around my house, and I don't even know where and when I'm going to be able to pick up the pieces.”“I feel useless,” Rodriguez said.
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