Lewis Kamb is a national FOIA reporter for NBC News, based in Seattle.
She hadn’t quite turned 19 and had just started college when Hana Hooper found out she was dying. An echocardiogram revealed the telltale signs in grayscale images of an enlarged heart chamber, its walls stretched thin. Her diagnosis — end-stage dilated cardiomyopathy — sounded complicated. But in simple terms, it meant that Hana needed a new heart, and fast.
Over the next few months, Susanna said she suffered constant, debilitating pain, according to her medical records and a state health department investigation. She avoided opening her mouth or touching her face, records show. She hardly spoke, ate only mashed foods, rarely slept and routinely missed work. She also fantasized about driving into oncoming traffic and off a bridge, the records show. “The pain was so bad,” she said in an interview, “I almost killed myself.
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