How one scientist aims to include more Black people in genetic data

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How one scientist aims to include more Black people in genetic data
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Geneticist Tshaka Cunningham aims to educate people, primarily people of color, about the value of engaging with the medical community and genetics research.

What happened to Lacks, for example, “left a scar on many a minority person,” Cunningham says. “It’s like, ‘Am I gonna get Henrietta Lacks-ed or Tuskegee-ed?’”

, a nonprofit that aims to educate people, primarily people of color, about the value of engaging with the medical community and genetics research.Erin Garcia de Jesús spoke with Cunningham about the need for diverse data in genetics and the challenges researchers face in reaching minority groups.One is the societal imperative for equity — and having research, and products [such as genetic tests and treatments] be broadly available for people.

I think in the United States — and I can really speak only from my experience in the United States — it’s because of the history of racial and ethnic division in our country, and some of the crimes that have been perpetrated on specific groups, even in medical science. African Americans have lived through slavery. They’ve lived through Jim Crow. They’ve lived through Tuskegee. They’ve lived through Henrietta Lacks.

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