Historic PHL Patients Congress bares strategies for strengthening patient’s voice in health policy-making, throughout continuum of care

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Historic PHL Patients Congress bares strategies for strengthening patient’s voice in health policy-making, throughout continuum of care
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The Philippine Alliance of Patient Organizations (PAPO), together with the Pharmaceutical and Healthcare Association of the Philippines (PHAP), the Asian Development Bank (ADB) and Philippine Health Insurance Corporation (PhilHealth), mounted the first-ever Philippine Patients Congress on August 29 to 30, 2024.

Senator JV Ejercito, the principal author of the Universal Health Care Act, served as the keynote speaker during the first Philippine Patients Congress held on August 29 to 30, 2024. He is pictured here with Karen Alparce-Villanueva, President of the Philippine Alliance of Patient Organizations , together with PAPO founders Kara Magsanoc-Alikpala and Girlie Garcia-Lorenzo, PAPO board members, and David Celdran, event host.

“Our organization is an institution built by different working hands,” says Karen Alparce-Villanueva, President of PAPO. “With our hands, we have the power to help, heal, serve, and support. The power of hands is the inspiration behind the key message of our Patients Congress, as we all come together, hand in hand, to elevate Universal Health Care in the Philippines.

“Leaders from respective countries must set the example and pave the way to make participatory decision-making the modus operandi of the health system,” adds Shibata. “Champions are important across the health system, so we can embed social participation in the design and implementation of health policies and programs.”

Meaningful engagement means bringing the experiences of all stakeholders into the policy development process, shares Mr. Ralph Emerson Degollacion, OIC Managing Director of Health Justice Philippines. Using a case study on raising sin taxes to fund UHC, Degollacion also highlighted the importance of data in forwarding patient advocacy.

Local leaders also have the power to bring their patient advocacy to the global stage, working with local and international partners to translate policies into actionable measures, reminds Dr. Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders .

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