Healthcare stakeholders and advocates have lamented that the funding for the implementation of Republic Act 10747 or the Rare Disease Act remained “inadequate.”
The Rare Disease Act was passed in 2016 to help Filipino rare disease patients to receive the comprehensive medical care they need to survive.
According to a statement of advocates, the funding for this project has only been available in 2022 with a P104.9 million budget. Meanwhile, this year’s budget was reduced significantly to P28.8 million.Alvin Manalansan, a Universal Health Care Watch coordinator, said they are hoping for sufficient funding for the Rare Diseases Law that will sustain in the succeeding years.
“We look forward to a more inclusive and efficient budget planning for 2024 and beyond to ensure the sustainable implementation of the rare disease program,” he noted. Meanwhile, the Director for Healthcare Policy of the Pharmaceutical and Healthcare Association of the Philippines, Lourdes Desiree Cembrano, highlighted that although rare diseases are certainly “individually rare”, they are still “collectively common.”Your subscription has been successful.
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