With the help of his medical team, Jon Custodio overcame a traumatic spine injury to run for charity.
at his home in Barnstable, Massachusetts on Cape Cod.
“Neurons [in your brain] can only really sustain a lack of oxygen and blood flow for about five to 10 minutes before they die off,” Custodio toldSpinal aneurysms of Custodio’s kind are incredibly rare. According to Custodio, only 350 cases occur in the United States in any given year.
After the doctors left for the night and Custodio was all alone in his room, it started to hit him: “You start thinking, ‘I’m never going to be able to go up a flight of stairs again.’ You can’t go to the beach; you can’t go on grass with a wheelchair. You can’t call an Uber. You’re never going to be able to go to your friend’s house if they don’t have handicap ramps. You’re not going to be able to go to places without elevators. You realize this is going to be a really lonely experience.
Custodio resigned himself to his fate. But by doing so, it made it easier for him to set goals; instead of worrying about his life five years from now, he focused on what he could accomplish each day.Yet one goal stuck out in Custodio’s mind. On his second day in the ICU, he told his sister over the phone that if he got better, he would run the Boston Marathon. He’d never run a marathon before. He wasn’t even a runner and didn't understand why people ran marathons at all.
Once they had successfully stopped the bleeding in his spine, he was transferred to the Spaulding Rehabilitation Hospital in Charlestown, Massachusetts to start rehab and physical therapy. After a month, Custodio was able to walk 300 feet, though afterwards he would be so exhausted he’d need to rest for hours. He moved from Spaulding to Cape Cod Rehab, which was closer to home, where he worked on bending over, touching his toes, and building leg strength. Eventually, he was able to stay at home and work on the exercises, only needing to go into the rehab center for three hours per week.
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