In an On Medicine blog, wirebird50 and colleagues discuss the Coronavirus Chronic Conditions and Disabilities Awareness Study which explored the pandemic experiences of people with a long-term condition or disability from minority ethnic groups.
CICADA Stories at the Bloomsbury TheatreMany people with chronic conditions or disabilities, particularly those from minoritized ethnic groups, faced obstacles before the pandemic in accessing or utilizing networks of support, health and social care. During the pandemic, some issues increased disproportionately in, and widened the inequalities gap between, people with disabilities from minoritized ethnic groups and those without disabilities and from the indigenous white British population.
Our ethos, using an asset- and strengths-based focus, was to learn from and build upon what participants said worked well for them when coping with issues or managing their health, rather than to impose external solutions. We focused on health and social care, informal networks, and access to vital ‘resources’ such as food and medicine and foregrounded the interplay of ethnicity, disability and citizenship status alongside other demographic factors.
These suggested participants felt vulnerable at the end of the COVID-19 restrictions. The pandemic’s social and financial impact appears to compound inequities, leaving many anxious about the future.
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