Forthcoming genetic therapies raise serious ethical questions, experts warn

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Forthcoming genetic therapies raise serious ethical questions, experts warn
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One of greatest risks of gene editing tools ‘is that the people who would benefit most will not be able to access them’

The next generation of advanced genetic therapies raises profound medical and ethical issues that must be thrashed out to ensure the game-changing technology benefits patients and society, a group of world-leading experts has warned.

But she warned: “One of the biggest and most realistic risks is that the people who could benefit most won’t be able to access or afford them.” Doudna and the other experts who talked to the Guardian are on the summit’s organising committee but shared their thoughts in a personal capacity. The same technology paves the way for therapies to enhance healthy humans, to make them faster, smarter, stronger, or more resistant to disease, though enhancement is trickier than mending single faulty genes, according to Professor Ewan Birney, joint director of the European Bioinformatics Institute near Cambridge. “It is far, far harder to know the edits which will ‘improve’ rather than ‘fix’,” he said.

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