Focusing on rare conditions could significantly reduce the burden of kidney disease on both patients and the NHS, according to a major new study led by UCL and the UK Kidney Association.
Mar 15 2024University College London
Chronic kidney disease ranges from mild loss of kidney function to kidney failure with around 6% of the general population having mild to moderate CKD - most often caused by poorly controlled blood pressure or diabetes. In this study, researchers from UCL and the UK Kidney Association charted the progression and outcomes in 28 rare kidney diseases by comparing data from 27,285 RaDaR patients with data from 2.81 million CKD patients in the general population.
"I hope that this will be a call to arms to show how important rare kidney diseases are and the many potential benefits of focusing on these conditions. Treatments for many of these diseases are either available or in development, so I think we now have a golden opportunity to substantially reduce the burden, both for patients and the NHS, of kidney failure."
Dr Katie Wong, first author of the study from UCL Division of Medicine and RaDaR Clinical Research Fellow at the UK Renal Registry
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