Edith Lemay and Sebastien Pelletier want their children to enjoy their vision while they still have it.
For Edith Lemay and her husband, Sebastien Pelletier, it’s a race against time to see as much of the world before their kids completely lose their vision.
Lemay said she got the idea to travel after Mia was diagnosed with the disease four years ago. They took her to a specialist after she kept bumping into items. Lemay told the specialist she wanted her daughter to start learning braille, but the specialist advised against it, saying her daughter’s vision was still good at that point.Her two youngest children also developed the same vision symptoms and were diagnosed with the same disease.
"It was so crazy beautiful, even my son said it looked like a dream because it was so surreal," she continued. Lemay said she doesn’t know when the children will completely lose their eyesight but they already have trouble seeing during the night. She said her two youngest sons have yet to comprehend their diagnosis but her daughter seems to accept it.
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