A Missouri family says they desperately need help after discovering that their newborn twins were diagnosed with a rare condition that their insurance company has denied medical coverage for.
The condition is one that, without proper treatment and medication, means their life expectancy is less than two years.The condition is called Spinal Muscular Atrophy . It’s a genetic condition that affects nerves and muscles, causing progressive weakness and wasting. The twins, Eli and Easton Reed , were diagnosed with the condition just days after they were born.
Even their appeal was denied, leaving the family in search of help.“Time is of the essence with this. It is very crucial that since they don’t have symptoms as of right now,” the twins’ mother, Amanda Reed, told sister station KMBC on Monday. “It's best for them to receive this treatment now. because once symptoms start, it's irreversible. So, time is of the essence, but we are still trying to explore all of our options.“There is good news from St.
Easton Eli Gene Therapy Genetic Disease Insurance Coverage Insurance Denied Medical Bills Medical Expenses Muscular Atrophy Newborns Occures Rare Disease Reed Spinal Musculary Atrophy Tests Twins Dhnd
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