The devoted aunty of a disabled boy from Heysham has launched a fundraiser to give him his 'dream room'
, told LancsLive. "It came as a massive shock to us all and we all had to have tests done because we couldn't figure out where it has come from."
Duchenne muscular dystrophy is a progressive and incurable condition diagnosed in childhood. It causes all the muscles in the body to gradually weaken and as a result Charlie is no longer able to play with his older brother Louis and baby brother Bobby who he adores.Over the last few years Charlie's condition has deteriorated to the point where he is now confined to a wheelchair.
Siana revealed that in 2020 tests showed that Charlie's heart was functioning at 35 per cent. Just nine months later it had decreased to 28 per cent."She added: "He has a lot of hospital appointments to go to so it's tough on him. And he's on a lot of steroids so he looks very bloated. We just want to be able to do something nice for him and for Kerri.
"The council built the annexe but they've left it a concrete shell so we need to pay for the floor, curtains and everything else. We would have just put a carpet in but the council said it needs to be a hard floor because of his wheelchair so the flooring alone will cost £1,000.
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