'Extraordinary Emma' defies the odds, thrives after heart transplant as an infant

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'Extraordinary Emma' defies the odds, thrives after heart transplant as an infant
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Emma Detwiler was born with a rare, debilitating heart defect where the right side of her heart did not develop properly.

CLEVELAND — A Northeast Ohio family is celebrating the miraculous recovery of their little girl who has defied the odds since birth.At three months old, a heart transplant ultimately saved her life.Faith got them through their most challenging and darkest moments.They're eternally grateful to the staff at Cleveland Clinic Children's for the care and support as well as the organ donor who would change their lives forever.

"Emma is the one who inspires us more than anything with her joy, with her excitement," Sean Detwiler said. Pulmonary Atresia would turn their worlds upside down, but it wouldn't stop Emma or the Detwilers from seizing the day.However, doctors said a heart transplant would be necessary to survive. "Fortunately, she is a very strong, was a very strong baby. And on February 13th of 2017, we were able to identify a heart and successfully get her through that surgery. It was a long road after that, as well. She needed additional time on the ventilator," Dr. Gerard Boyle, Cleveland Clinic Children's Director of Pediatric Heart Transplantation, said.

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