A study in BMCWomensHealth finds that communication differences, sensory aspects, and social factors contribute to the experience of period pain and treatment uptake for autistic menstruators.
]. The researchers met frequently during the data collection phase to reflect on the process, and during the data analysis phase to discuss and refine initial codes and themes. Reflexivity – a set of continuous, collaborative, and multifaceted approaches that enable researchers to self-consciously critique, appraise, and evaluate how their subjectivity and context influence their research [] – was practiced throughout the research process.
“It wasn’t appropriately treated by the pill. It wasn’t a very good assessment at the time. Perhaps advice and being told what to expect would have been more beneficial.” . “You are dismissed all the time and not taken seriously and made to feel like a silly little girl who doesn’t know exactly what their body is going through.” .
“I think a lot of issues could be addressed through education too, for example I hardly know the basics of my own cycle and what I know is from basic biology at school… Especially in school, there was nothing and I needed that. It was taboo at school, and it was too awkward to talk about it so I learned nothing, and I could have benefited from learning.” .
“On days when I am in pain, I might need to spend the afternoon in bed. So, it definitely does restrict my activities, absolutely.” .Autistic menstruators highlighted the sensory impacts when menstruating and experiencing menstrual pain. Some autistic menstruators discussed the impact of heightened interoception on their period pain experiences. Sensory overload was also described by numerous autistic participants in relation to their experience of menstruation and period pain.
“Any big change in my body does overwhelm me, I think it’s something that not everyone gets and like the sensory aspect of it [period pain] is obviously a lot worse… than it is for other people.” .Autistic menstruators discussed the social factors which affected their experience of period pain and treatment uptake. Some menstruators highlighted the role of social exclusion in their understanding and experience of period pain.
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