Nine-year-old Sam is taking part in a trial of a new drug researchers hope can boost healthy bone growth.
Jenn ShortSam Short, nine, from south London has been on the treatment for three years as part of an international trial.
Like other children with achondroplasia, Sam has short legs and arms. The main health concern is how his spine and legs will grow as he ages. "Tory was very much part of the decision to do this. If ever she does not want to be part of it, that's her choice."
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