Newborns aren't all screened for the same health issues, despite national recommendations. Our InvestigateTV team has more.
Still more than seven years later, only 35 states and the District of Columbia include the potentially fatal ALD in their newborn screening, according to an InvestigateTV analysis of federal newborn screening data.
, or HRSA, and found that as of December, not a single state tests for all 37 conditions recommended by the federal government. Ultimately, although his committee has the power to make recommendations, he realizes it is powerless when it comes to carrying out the testing. Kelly Denora Bonacorsa held her daughter in her arms as she told Calonge’s group last November what it’s like to have a child with“Sofia is one year old, and she is dying,” Bonacorsa told the Advisory Committee on Heritable Disorders in Newborns and Children.
But instead, Sofia requires round-the-clock medications and receives hospice care for pain management. Bonacorsa said that Sofia’s medical expenses have exceeded half a million dollars.the condition didn’t meet the threshold for inclusion in part because “There is high to moderate certainty that adoption of screening for the targeted condition would have small to zero net benefit”.
But those numbers can be somewhat confusing because for those conditions not on the RUSP, there is even less uniformity. Each state has different ways it may count its tests. Sarah and Keith Streeval stand in front of a memorial to their daughter, Bella, who died in 2020 from the rare disorder.
United States Latest News, United States Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Breakingviews - Credit Suisse investor’s exit will zip some lipsThe fate of Saudi National Bank’s chairman may persuade other investors to maintain radio silence for a while. The lender on Monday said Ammar Al Khudairy resigned for personal reasons and will be replaced by current CEO Saeed Mohammed Al Ghamdi. The reshuffle comes less than two weeks after comments by Credit Suisse’s largest shareholder fuelled a panic by investors in the Swiss lender, prompting the government to orchestrate its cut-price rescue by rival UBS .
Read more »
San Antonio home value tracker: These are the most (and least) expensive ZIP codesAs San Antonio housing values continue to climb, use our interactive map to see prices in neighborhoods that interest you.
Read more »
Man escapes kidnappers who bound him with zip ties and duct tape, police sayA Cleveland man is accused of kidnapping an acquaintance he’d hired for a plumbing job, holding him for ransom and firing shots at him as he escaped.
Read more »
BetMGM Bonus Code NPBONUS1100 unlocks $1,100 offer for Texas-Miami, any gameThe BetMGM bonus code NPBONUS1100 allows new customers to get up to $1,100 in bonus bets.
Read more »
Caesars Massachusetts Promo Code NPBONUS1BET: Grab $1,500 for Sunday’s NBA action, any sportMassachusetts residents can claim an incredible new customer offer with the Caesars Sportsbook promo code NPBONUS1BET.
Read more »
bet365 Ohio bonus code NYP365: Score $365 in Bet Credits for Sunday’s slateNew customers can get $365 in bet credits when they sign up to bet365 with the promo code NYP365.
Read more »